Friday, October 3, 2008

49 hours

It's been 49 hours since they put Ezekiel's chest tube in... so we have 23 hours left until this "critical" stage is over. I think I forgot to mention this in my last post, but when they put his chest tube in, they told us that he had a good chance of dying within the next 72 hours. !!!!!!!! They said it was very important for nothing else to go wrong. He was at the ceiling of his ventilator settings and so if something were to go wrong, there were no more knobs to turn up.... we had a few scary moments yesterday. BUT THANKFULLY he is having a really good night tonight!! I just got back from the hospital and all night long his oxygen saturation level (how much oxygen he is getting in his bloodstream) was very high (94-100%) and they had to continually turn his oxygen level on the ventilator down--- now instead of the ventilator being set at 100% oxygen (that being one of the "ceilings" that made things so scary) it is down to 70-80%. Just fyi, the normal air we breathe has 21% oxygen. I don't know if all that made sense, but it means that he is getting past this risky stage. He is still very sick and on a LOT of crazy drugs... but he is getting better. I know he will be alright. Pray for his lungs-- his right lung is colapsed. They said in his last x-ray that it is starting to look a little better. The combination of his premature lungs (which they call lung disease. Acutally they call his lung disease "bronco pulmonary displasia", or bpd... which just means severe cronic lung disease) and pneumonia and the air pocket/chest tube is a lot for him to deal with. But they said they are amazed at how well the rest of his body is doing... they said that if you don't look at his lungs you would never know he is sick-- nothing else at all is wrong, everything else is very healthy. I know there are so soo many people praying, especially today, and I can see a huge difference not only in Ezekiel's health but also in me. I don't feel like I'm going to throw up all the time now. I was literally unable to sleep because of anxiety that made me feel sick all the time.

Speaking of sleep, it is very late. I mean early. So I am off to bed. :) Thank you Jesus for helping Ezekiel so much today.

10 comments:

Luanne in Ohio said...

Kristin-

What a blessing...a good night is what Ezie, you and Daniel needed (and all of us who are praying needed it, too!). We WILL continue to pray. I am so proud of you for hanging in there!!! You may feel like you have no choice, but you are choosing to continue to persevere and pray...and to post your blog so that all of us know what is going on. I know this is so excruciatingly hard for you and Daniel; your dad and I never had to go through anything so frightening with you or David.I am so blssed to be your Mom, Daniel's mom-in-law, and, of course, Ezekiel's grandma. We won't keep praying up here in Ohio, honey, and I am so thankful for all your friends and church friends in Texas who are praying for Ezie, too.

Love, Mom

Luanne in Ohio said...

Hi Ezie-

It's Grandma from Ohio. I'm so glad you had a good night!!! So many people have fallen in love with you on your Mommy and Daddy's blog, and they are praying for you like crazy! Keep resting, growing and healing, little man!

I pray that you feel Jesus' presense with you every second, and that you know how much He loves you, how much your mommy and daddy love you, and how powerful God is in you. Wow! You are still 1 month and 1 day BEFORE your due date of November 4, but you are here, and you've been here since August 6...way early...talk about an out-of-body experience for such a little guy! When I was praying for you Thursday night, I had a picture in my head of Jesus sitting there with you, knitting. OK, I know that sounds crazy. But it was a special kind of knitting, not exactly like the kind your mommy does when she sits and knits for you. Just as God knit you together in your mommy's womb (Psalm 139:13), I saw a picture in my brain of Jesus sitting there, keeping you company, and knitting YOU. I pray that Jesus continues to knit you together....especially those gnarly little alveoli cells (sacs) in your lungs that have given you so much trouble, and every other boo-boo, big or little, that needs knitted,kissed and fixed.

There's a song we used to sing at church when your mommy wss growing up that says, "Every breath I take I breathe in You....You make me move, Jesus!" That's what I pray for you today, little man.

Love, Grandma

Luanne said...

OK...correction to blog post to Kristin....

It asn't supposed to say, We won't keep praying (obviously!!!!)

it was supposed to say, We won't QUIT praying here in Ohio....and we will KEEP ON praying ....sorry....very sleepy grandma trying to type too early in the morning.

Nathan said...

Hi guys. We are praying for you and thinking about you constantly. I was going to call, but I don't want to wake you up. Call me if you need anything at all. We won't stop praying. Love, Aimee, Nathan, and kids

Uncle Bob Bob and aunt Linda said...

We love all of you and our prayers are with you every day.Please take care of yourselves.

Laurie from Ohio said...

Hi Kristen, Daniel and beautiful Ezie! Ezekiel, you sure are a mighty "man" of God! You are a wonderful fighter - a warrior of God. His strength is definitely within you. You aren't even supposed to be a day old and already you have an awesome testimony. We are standing in the gap for you here in Ohio. I cannot wait until you are able to travel to visit Grandma in Columbus. I am sure that she will want to show you off to the entire world - or at least to the entire choir.

My prayers are with you guys. May you feel His peace that passes all understanding during this entire experience.

teresamartinpike said...

Oh, gosh you guys!!!
I had no idea things were this intense!!! Dad said he talked to Daniel the other evening and had no idea things were this scary for you guys! He said things were pretty good!!! No worries... God knew all this! He's the one that needs to know what's going on with him. :-) We will pray more specifically now; I love you all!

Anonymous said...

It's 4:30am Saturday and someone's praying for you (probably lots of "someones" are praying for you at this moment).

Anonymous said...

Still praying. How's the little guy doing?

Kristin said...

Thank you everyone for all your prayers and love! We can definitely see a huge difference. :)